Join the Fabry Legion, the Fabry Community's Army fighting against Fabry disease.

Join the fight against Fabry disease by registering on the National Fabry Disease Foundation website and by taking our surveys as they are distributed. The NFDF survey program is called the Patient-Reported Outcomes Survey (PROS) program where we learn from the PROS (individuals with Fabry disease). The surveys help us to learn more about our disease and about our community and helps to develop a communal voice based on patient and family member feedback. Together, we have a stronger voice to cause and support positive change for individuals with Fabry disease and our families.

Increasing the number of people we can reach to support critical initiatives is also very important. The stronger our voice, the better we are able to make a difference. We rely on our community to support initiatives such as:

• Advocating for approval of new treatment options
• Supporting important legislative and government policy initiatives for positive change
• Gaining Fabry disease awareness through Governor's proclamations for Fabry Disease Awareness Month
• Gaining support for programs and projects that benefit our community
• Highlighting the seriousness of our disease through our "medical events awareness" and "Remembering our family and friends" programs

We never share personal information unless we have permission for a specific purpose.

Additionally, stay connected to the NFDF and the Fabry disease community by registering for our Newsletter, Liking us on Facebook, Following us on Twitter and Subscribing to our YouTube Channel. Links to all of these are located just to the right of this paragraph. We hope you'll stay in touch!